Grave

i will be your grave

this body
is the place
you will be buried

my head will be the stone where
your name is written

i will lay flowers
on my belly
for you

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Positive

I walk a lot. I usually have an actual or imaginary purpose for my walks other than just wandering around. I walk to the grocery store, the pharmacy, a street market, or I explore a new street. There’s something I’ve been thinking about while I walk. Hablando sola. I’ve been talking to myself about it for a long time and I haven’t known how to break it to you. I think a lot of things I can’t say, because there are things you say when your husband has a late-stage metastatic cancer, and things you don’t. Trust me.

This one, I think I’ve got broken down into bite-sized pieces.

So when you find out that a loved one has something bad that isn’t going to go away, people reassure you with things like, “Be positive. You never know,” and, “I’m going to pray for a miracle,” and, “Ten years ago my uncle had stage 4 brain cancer and how he’s running marathons and writing computer software,” or some such thing. And when you first find out there have been monsters lurking in the shadows all this time, those things are very reassuring. Obviously, Hope is essential for Life and Survival, and the last thing a sick person should do is give up hope. Same for his wife.

I’m just going to say that personally, three months in, I’m a little bit beyond the everything-might-be-alright stage. Nothing is alright. And when you tell me to “be positive,” I feel like you don’t get it. I’m not mad. And I’m not going to leap off the balcony. I’m just saying.

Before I go on, let me state that gigantic, cataclysmic miracles are always invited. I know they happen, and they are welcome any time. But if they were normal, or something you should hold your breath for, then they wouldn’t be called Miracles now would they? They would be called Normal. So forgive me if I’m not counting on one. I would love one. You can keep praying for one. But please don’t frown sideways at me if this is all I have to say about miracles. Thanks.

Pio is a really positive guy. He always has been. Me too. I think we’re both about as positive as they come. So don’t tell me to be positive. I was born positive. Pio was born ridiculously positive. Nobody is sitting around the house moping, and all things considered, I think that should serve as evidence that we both ARE positive. Even our blood types are positive.

But I’ve been talking to myself a lot about what “positive” looks like when you have metastatic stomach cancer. Or your husband does. Two months ago, the doctor told us that this isn’t going to go away. So where’s the line between being “positive” and sticking your head in the sand? Hm? A month ago the oncologist told us that she didn’t even want to agree to give him chemo at all, and here he is 3 treatments in and still fighting like a badger. They told us the chemo, if it is successful, could slow down or stop the progress of the disease. Did they actually use the word “stop” or did Pio add that in? I don’t remember anymore. At any rate, let’s not pretend we think they meant “stop indefinitely,” if they even used that word at all. Or, oops. Would that be not-being positive? Is there any value in being realistic? How about reasonable? They very specifically stated that this does not have a cure.

I can’t tell you what’s going on inside anyone else’s head; I can only tell you what’s going on inside mine. And in some ways it isn’t fair, because I’m not the one with anything wrong with me. I feel a guilty doing all the talking, and fear that I may be misunderstood as trying to make this all about me. So, read on at your own risk. Yes, this is about me. It isn’t about cancer. It’s about holding on and letting go.

To me, today, being “positive” means putting my big-girl pants on every single morning when I get out of bed.  It means finding the courage to be a cheerful presence in the house–not too much; just enough.  It means finding a reason to go out for a walk in the fresh air, and going. Being positive means looking right at all the ugly things that are happening and taking a deep breath. And naming them. It doesn’t mean pretending they aren’t ugly. Or pretending tomorrow they might wake up suddenly pretty. Or pretending that any day is going to be better than today for a long, long time. Being positive right now, means acknowledging that it’s going to get worse before it gets better, because I’m sorry but it is, and it doesn’t help you or me to pretend it’s not. And it means believing that someday things are not going to be like they are today.

Being positive means that I find the good things about each day and deeply enjoy them. The red ball of the sun rising quietly over the Duomo at 7 AM. Whatever crazy neighbor that is who has a ROOSTER in Milan that I can hear crowing before traffic noise starts. Giggling with Pio at breakfast about his crazy hair. Peaches. Proscuitto cotto. Homemade chocolate pudding. A visit from Kiara. A silly tv commercial that makes us laugh. The bread Pio suddenly got up from the couch and made on Saturday. Thunder. A rainbow. A long walk during which I talk to myself like a crazy lady, sneak out a few tears, hum a song, buy an ice cream cone. Checking the surf on the surf cam in Tamarindo. Watching the evening news with Pio as night falls. Getting up to click the light on so I can keep crocheting while he snoozes. Drinking chamomile tea together. Listening to him breathe while he sleeps.

Send love. Send light. Send good vibes. Send thoughts. Send prayers. Pray for a miracle if you dare, but pray for an atomic one, which ends in surf boards and motorcycles. I’m not interested in piddly little miracles where we all suffer for miraculous amounts of time. Wish us a good day. Wish us more good days than bad days. Wish us sleep—that’s always a blessing. Wish us peace. Wish us unexpected laugher. But don’t bother with, “Be positive.” I am positive. Absolutely positive. Entirely, and without the shadow of a doubt.

Who Would Have Thought

Who would have thought that being tired could be a symptom of something so sinister?  It seemed so normal, especially for someone who works as hard as my husband does.  Especially in Costa Rica where it’s so hot.

Who would have thought that the pain in his shoulder wasn’t a strained muscle or a pinched nerve?  Who would have thought that it was a reflection of things going wrong in an organ that can’t feel pain–his liver?

Who would have thought?

But then pain started under the right side of rib cage, and the tiredness grew into a constant sort of pallor and an uncharacteristic exhaustion.

Who would have thought that when that ultrasound showed something that the doctor would refer to as “metastasis” in my husband’s liver, I would be the one having to lie on the floor with my feet up because of the dizzy spell that grabbed me and wouldn’t let go?

Who would have thought, or even begun to guess, how many things were silently going wrong?  But blood tests don’t lie.

Who would have thought I would find myself sitting at my desk on a Thursday afternoon, refusing tears, buying plane tickets for Italy two days later?

Not me.

But that is exactly what happened.  As an Italian citizen, his medical care will be nearly free here, and let’s not compare the doctors in Milan with the ones in Liberia.

Who would have thought that it takes 10 days to get the results of a biopsy?

Who would have thought 10 days could take so long?  When you watch your husband become weaker by the day and all you can do is smile and try to breathe, it seems like 100 years.

Who would have thought I could put on my shoes in the morning, go outside for a run, and could run 7 kilometers before I was tired enough to stop?  Not me.  I don’t even like running.  Although I like it better than waiting.

I keep reminding myself of what I wrote a few months ago about being fearless vs being brave.  Right now I am being brave.  Because I am scared to death.  I’m afraid of what might happen.  I’m afraid of what might not happen.

Who would have thought that exactly two years after my husband and I came to Italy on vacation we would be back in the same city, staying with the same brother at the same time of year, but with for the purpose of saving his life?

A month ago, he was complaining about being tired.  He thought he had dengue.  Two months ago he had a sore shoulder.  Three months ago we were getting up at dawn to go surfing.

Who would have thought life could unravel this far in two weeks?  I guess, really, all it needs is a minute.

Albertina Talking to Jaguars

a poem for a girl who isn’t born yet about a woman who has passed on

Your bis bis abuela
Albertina
knew about the danger of
jaguars at the quebrada.
She remembered when the
mapmakers came to town and
tried to change its name to
something holy like
Santa Barbara down the road, or
San Lazaro further on.
She said she told them no.

Your mamá was
too little to listen to stories back
when Albertina’s mind
was clear, and then Albertina
started seeing angels.
She walked
barefoot to Santa Cruz with
comales on her head and
sold them each for one colon
to buy sugar and
coffee–
things she couldn’t grow or grind herself.
Then she walked home.

She knew the old stories
the old ways.
She had seven sons and
no husband to obey.
Me decía “mi nieta”
because she knew I belonged to her
even after she forgot my name, and
sat on the porch talking
to jaguars until
she turned one hundred.

Jetty Edge

We twist around to
look out the rear window
laughing until tears blind us
and I’m afraid you are
going to back off the edge
in the dark, that we will
tumble over the rocks into the
Pacific but I can’t stop
laughing.

I can see the headlines:
Stoned Americans Back Jeep Over Jetty
Edge, Directly Into Ocean.
I say, “Go slow,” and you sputter that
you’re going all of two miles
per hour but my God being
this close to you makes me
so dizzy I can’t see and my
hair tangles in what must be your
solar wind.

Bright white shapes move
behind us, a group of cows wandering
out onto the jetty to graze,
and you say, “What are those?
People?” and I laugh more because
you’re wasted and they are cows.
My sides hurt and I can’t talk.
But then they really are
other people walking to their cars,
people who got off the boat with us.

I say, “I thought they were cows,” and
then you have to stop the car because
you are laughing too hard and you
tell me I’m crazy which we both
already know.

I don’t say it, but I don’t
care if you drive over the rocks and
we drown together tonight.
Go ahead.
All day we sailed
on the boat with the sun
slathering our skin drinking
rum and everybody kept passing
the joints and singing along to Bob’s guitar.
I never even smoke and I
tried not to, but I would do
anything for you.
Try me, I would.