Deep Space

I didn’t write this; I came across it this summer in an article about Lady Diana’s death, and I copied and pasted it into a Word document on my computer so that I could come back to it later:

“Grief is exhausting, as we all know. The bereaved are muddled and tense, they need allowances made. But who knows you are mourning, if there is nothing but a long face to set you apart? No one wants to go back to the elaborate conventions of the Victorians, but they had the merit of tagging the bereaved, marking them out for tenderness. And if your secret was that you felt no sorrow, your clothes did the right thing on your behalf. Now funeral notices specify “colourful clothing”. The grief-stricken are described as “depressed”, as if sorrow were a pathology. We pour every effort into cheering ourselves up and releasing balloons. When someone dies, “he wouldn’t have wanted to see long faces”, we assure ourselves – but we cross our fingers as we say it. What if he did? What if the dead person hoped for us to rend our garments and wail?”

There’s so much there, I don’t really even know where to start.  I’ve been thinking about this a lot—all of it.  I’ve been thinking about Sadness and how well/poorly-prepared we are for its arrival.  Because it comes.

I think maybe the Victorian’s were onto something.  And I think we modern folk are stupid, trying to convince ourselves that some type of forced cheerfulness in the face of loss has any spiritual merit whatsoever. It perhaps provides some relief to the audience, but it is of no help to the person performing it.  If you ask me how I am, and I tell you I’m fine, does that make you feel better?  Do you believe me?  Why would you?

And we are wise not to confuse Sadness, sorrow, even, with depression.  They are not the same.

I’m terribly sad right now.  I’m not depressed.  How do I know that?  I do, and it is your job to believe me.  No, I’m not happy.  Yes, I cry sometimes.  No, I often do not want to talk to anyone.  Yes, sometimes my favorite activity is looking out the window for a good long while.  And no, I repeat, I am not depressed.  If it disturbs you to hear about my sadness, I don’t have to tell you.  But if Sadness frightens you or makes you uncomfortable, well, what can I say?  That one’s on your plate.

If we feel fine about being happy over happy things, why should we be concerned about feeling sad over sad things?

Yes, I can laugh and enjoy things.  Yes, I have been accepting dinner invitations from Pio’s family, not crying over my pizza at them, and having a perfectly good time.  Yes, I still try to like something about every day.  Maybe walking.  Maybe shopping.  Persimmons.  (OMG, persimmons!)  Maybe looking at pictures of Pio and me.  Maybe packing my suitcases.  I love packing suitcases.  If all else fails, I can fill the bathtub up with water so hot it makes me dizzy, and just feel warm.

I never thought I would say this, but I would love it if social custom required me to wear black (or specific in some other way) clothing right now.  It would be a relief.  It would speak for me.  Then I wouldn’t sometimes think, when I find myself having a good time, that perhaps I have for one moment forgotten to feel appropriately sad.  Then, when I am crying into the telephone at the train station, no one will wonder if I need them to phone the police.  The haunted look I sometimes catch on my face in the mirror would make sense to other people who see it.  No explanation needed.

I have no intention of being sad for the rest of my life.  I know Pio would not want me to be sad for the rest of my life.  But I think he would be alright with me being sad right now.  He did not want to leave me—he told me he didn’t—and if dead people can have terrestrial emotions, I think he’s sad too.  Or he was at first.  If dead people have terrestrial emotions, for how long do they have them?  So please don’t try to cheer me up.  We can have fun together.  We can talk about something else.  You can distract me.  You can make me laugh.  But it is breaking the rules to try to make me feel any particular way.

You want to know what it feels like?  Don’t be scared.  I will tell you.  Because this could be you someday.  Death is normal.  It feels like instead of being full of blood and bone, inside my skin, I am full of deep space.  Light years.  Deep, deep, deep silence.  Complete stillness where nothing moves or makes a sound.  And it’s not frightening.  It’s just very deep, and very quiet.  Still.  And infinite.  And now you’re thinking, “Oh—dark cold nothingness!  See! She’s depressed!”  Shut up.  I didn’t say dark or cold or nothing.  All of that is beside the point.  Besides, the less you say, the closer you are to being right.

Shhhh.

Yes.

Rilke’s “Letters To A Young Poet,” the only book you ever need to read, has an entire letter devoted to Sadness.  It’s Letter #8.  You should read it.  I would paste the whole thing right here if I thought you would read it all, but I think you might not, so I will only paste  one paragraph:

“So you mustn’t be frightened if a sadness rises in front of you, larger than any you have ever seen; if an anxiety, like light and cloud-shadows, moves over your hands and over everything you do. You must realize that something is happening to you, that life has not forgotten you, that it holds you in its hand and will not let you fall. Why do you want to shut out of your life any uneasiness, any misery, any depression, since after all you don’t know what work these conditions are doing inside you? Why do you want to persecute yourself with the question of where all this is coming from and where it is going? Since you know, after all, that you are in the midst of transitions and you wished for nothing so much as to change. If there is anything unhealthy in your reactions, just bear in mind that sickness is the means by which an organism frees itself from what is alien; so one must simply help it to be sick, to have its whole sickness and to break out with it, since that is the way it gets better. In you, so much is happening now; you must be patient like someone who is sick, and confident like some one who is recovering; for perhaps you are both. And more: you are also the doctor, who has to watch over himself. But in every sickness there are many days when the doctor can do nothing but wait. And that is what you, insofar as you are your own doctor, must now do, more than anything else.”

So anyway.   That’s where I am.  That’s what I’m thinking about.

Four weeks and about 1 hour ago, Pio left me here with you.  Tomorrow, I will pick up his ashes.  In 10 days, I will take him home.

Deep space is where everything ends and begins.

Positive

I walk a lot. I usually have an actual or imaginary purpose for my walks other than just wandering around. I walk to the grocery store, the pharmacy, a street market, or I explore a new street. There’s something I’ve been thinking about while I walk. Hablando sola. I’ve been talking to myself about it for a long time and I haven’t known how to break it to you. I think a lot of things I can’t say, because there are things you say when your husband has a late-stage metastatic cancer, and things you don’t. Trust me.

This one, I think I’ve got broken down into bite-sized pieces.

So when you find out that a loved one has something bad that isn’t going to go away, people reassure you with things like, “Be positive. You never know,” and, “I’m going to pray for a miracle,” and, “Ten years ago my uncle had stage 4 brain cancer and how he’s running marathons and writing computer software,” or some such thing. And when you first find out there have been monsters lurking in the shadows all this time, those things are very reassuring. Obviously, Hope is essential for Life and Survival, and the last thing a sick person should do is give up hope. Same for his wife.

I’m just going to say that personally, three months in, I’m a little bit beyond the everything-might-be-alright stage. Nothing is alright. And when you tell me to “be positive,” I feel like you don’t get it. I’m not mad. And I’m not going to leap off the balcony. I’m just saying.

Before I go on, let me state that gigantic, cataclysmic miracles are always invited. I know they happen, and they are welcome any time. But if they were normal, or something you should hold your breath for, then they wouldn’t be called Miracles now would they? They would be called Normal. So forgive me if I’m not counting on one. I would love one. You can keep praying for one. But please don’t frown sideways at me if this is all I have to say about miracles. Thanks.

Pio is a really positive guy. He always has been. Me too. I think we’re both about as positive as they come. So don’t tell me to be positive. I was born positive. Pio was born ridiculously positive. Nobody is sitting around the house moping, and all things considered, I think that should serve as evidence that we both ARE positive. Even our blood types are positive.

But I’ve been talking to myself a lot about what “positive” looks like when you have metastatic stomach cancer. Or your husband does. Two months ago, the doctor told us that this isn’t going to go away. So where’s the line between being “positive” and sticking your head in the sand? Hm? A month ago the oncologist told us that she didn’t even want to agree to give him chemo at all, and here he is 3 treatments in and still fighting like a badger. They told us the chemo, if it is successful, could slow down or stop the progress of the disease. Did they actually use the word “stop” or did Pio add that in? I don’t remember anymore. At any rate, let’s not pretend we think they meant “stop indefinitely,” if they even used that word at all. Or, oops. Would that be not-being positive? Is there any value in being realistic? How about reasonable? They very specifically stated that this does not have a cure.

I can’t tell you what’s going on inside anyone else’s head; I can only tell you what’s going on inside mine. And in some ways it isn’t fair, because I’m not the one with anything wrong with me. I feel a guilty doing all the talking, and fear that I may be misunderstood as trying to make this all about me. So, read on at your own risk. Yes, this is about me. It isn’t about cancer. It’s about holding on and letting go.

To me, today, being “positive” means putting my big-girl pants on every single morning when I get out of bed.  It means finding the courage to be a cheerful presence in the house–not too much; just enough.  It means finding a reason to go out for a walk in the fresh air, and going. Being positive means looking right at all the ugly things that are happening and taking a deep breath. And naming them. It doesn’t mean pretending they aren’t ugly. Or pretending tomorrow they might wake up suddenly pretty. Or pretending that any day is going to be better than today for a long, long time. Being positive right now, means acknowledging that it’s going to get worse before it gets better, because I’m sorry but it is, and it doesn’t help you or me to pretend it’s not. And it means believing that someday things are not going to be like they are today.

Being positive means that I find the good things about each day and deeply enjoy them. The red ball of the sun rising quietly over the Duomo at 7 AM. Whatever crazy neighbor that is who has a ROOSTER in Milan that I can hear crowing before traffic noise starts. Giggling with Pio at breakfast about his crazy hair. Peaches. Proscuitto cotto. Homemade chocolate pudding. A visit from Kiara. A silly tv commercial that makes us laugh. The bread Pio suddenly got up from the couch and made on Saturday. Thunder. A rainbow. A long walk during which I talk to myself like a crazy lady, sneak out a few tears, hum a song, buy an ice cream cone. Checking the surf on the surf cam in Tamarindo. Watching the evening news with Pio as night falls. Getting up to click the light on so I can keep crocheting while he snoozes. Drinking chamomile tea together. Listening to him breathe while he sleeps.

Send love. Send light. Send good vibes. Send thoughts. Send prayers. Pray for a miracle if you dare, but pray for an atomic one, which ends in surf boards and motorcycles. I’m not interested in piddly little miracles where we all suffer for miraculous amounts of time. Wish us a good day. Wish us more good days than bad days. Wish us sleep—that’s always a blessing. Wish us peace. Wish us unexpected laugher. But don’t bother with, “Be positive.” I am positive. Absolutely positive. Entirely, and without the shadow of a doubt.

Who Would Have Thought

Who would have thought that being tired could be a symptom of something so sinister?  It seemed so normal, especially for someone who works as hard as my husband does.  Especially in Costa Rica where it’s so hot.

Who would have thought that the pain in his shoulder wasn’t a strained muscle or a pinched nerve?  Who would have thought that it was a reflection of things going wrong in an organ that can’t feel pain–his liver?

Who would have thought?

But then pain started under the right side of rib cage, and the tiredness grew into a constant sort of pallor and an uncharacteristic exhaustion.

Who would have thought that when that ultrasound showed something that the doctor would refer to as “metastasis” in my husband’s liver, I would be the one having to lie on the floor with my feet up because of the dizzy spell that grabbed me and wouldn’t let go?

Who would have thought, or even begun to guess, how many things were silently going wrong?  But blood tests don’t lie.

Who would have thought I would find myself sitting at my desk on a Thursday afternoon, refusing tears, buying plane tickets for Italy two days later?

Not me.

But that is exactly what happened.  As an Italian citizen, his medical care will be nearly free here, and let’s not compare the doctors in Milan with the ones in Liberia.

Who would have thought that it takes 10 days to get the results of a biopsy?

Who would have thought 10 days could take so long?  When you watch your husband become weaker by the day and all you can do is smile and try to breathe, it seems like 100 years.

Who would have thought I could put on my shoes in the morning, go outside for a run, and could run 7 kilometers before I was tired enough to stop?  Not me.  I don’t even like running.  Although I like it better than waiting.

I keep reminding myself of what I wrote a few months ago about being fearless vs being brave.  Right now I am being brave.  Because I am scared to death.  I’m afraid of what might happen.  I’m afraid of what might not happen.

Who would have thought that exactly two years after my husband and I came to Italy on vacation we would be back in the same city, staying with the same brother at the same time of year, but with for the purpose of saving his life?

A month ago, he was complaining about being tired.  He thought he had dengue.  Two months ago he had a sore shoulder.  Three months ago we were getting up at dawn to go surfing.

Who would have thought life could unravel this far in two weeks?  I guess, really, all it needs is a minute.

Albertina Talking to Jaguars

a poem for a girl who isn’t born yet about a woman who has passed on

Your bis bis abuela
Albertina
knew about the danger of
jaguars at the quebrada.
She remembered when the
mapmakers came to town and
tried to change its name to
something holy like
Santa Barbara down the road, or
San Lazaro further on.
She said she told them no.

Your mamá was
too little to listen to stories back
when Albertina’s mind
was clear, and then Albertina
started seeing angels.
She walked
barefoot to Santa Cruz with
comales on her head and
sold them each for one colon
to buy sugar and
coffee–
things she couldn’t grow or grind herself.
Then she walked home.

She knew the old stories
the old ways.
She had seven sons and
no husband to obey.
Me decía “mi nieta”
because she knew I belonged to her
even after she forgot my name, and
sat on the porch talking
to jaguars until
she turned one hundred.

Jetty Edge

We twist around to
look out the rear window
laughing until tears blind us
and I’m afraid you are
going to back off the edge
in the dark, that we will
tumble over the rocks into the
Pacific but I can’t stop
laughing.

I can see the headlines:
Stoned Americans Back Jeep Over Jetty
Edge, Directly Into Ocean.
I say, “Go slow,” and you sputter that
you’re going all of two miles
per hour but my God being
this close to you makes me
so dizzy I can’t see and my
hair tangles in what must be your
solar wind.

Bright white shapes move
behind us, a group of cows wandering
out onto the jetty to graze,
and you say, “What are those?
People?” and I laugh more because
you’re wasted and they are cows.
My sides hurt and I can’t talk.
But then they really are
other people walking to their cars,
people who got off the boat with us.

I say, “I thought they were cows,” and
then you have to stop the car because
you are laughing too hard and you
tell me I’m crazy which we both
already know.

I don’t say it, but I don’t
care if you drive over the rocks and
we drown together tonight.
Go ahead.
All day we sailed
on the boat with the sun
slathering our skin drinking
rum and everybody kept passing
the joints and singing along to Bob’s guitar.
I never even smoke and I
tried not to, but I would do
anything for you.
Try me, I would.

where the ocean is

warm
on the other side of
my eyes
close and
I am home
deep
in the
blue green
breathing of being
alive in the
sunshine moonlight
first place of
ever love for
my bones
my blood
and the waves
siempre salt
water warm
spilling up and over
out from under
sleeping eyes
in the dark

The Crimson Flag of Silence

I have news to share!  I had a different post planned for today, but it can wait.  

Six months ago I posted the story of how my friend Barbara Struncova disappeared.  The story contains some small errors, some speculation and an immense amount of research.  Whereas, technically, it must be considered fiction, it is a result of my profound and continuing effort to understand the truth.  The segments of the story, put together, have received thousands of reads—far beyond anything I ever imagined.  I can only understand this as the world answering back to me and to Barbara, “You have touched us.”

Many of you wrote back to me.  I heard from Barbara’s friends, past friends and acquaintances of “Jim,” and many who have no connection to the story at all but are moved by this tragedy.

It is therefore with great joy that I share with you this piece of public information:  “Jim”was arrested on May 28, 2015 in the airport in Denver, Colorado.  He is being held, as I write these words, on charges of passport theft and identity fraud.  There are no other charges at this time and it is not in the best interest of justice for me to speculate or further comment on anything that is not related to the existing charges.  But it is safe to hope and pray, and it is safe say that I am jubilant as his lies begin to unravel!  I feel that it is important for me to continue to call this individual “Jim” in this forum, as what I am suggesting he as done goes far beyond fraud.  If you would like to know his real name, your friend Google will be happy to provide that.

There a poem that I want to share on this happy occasion.  I wrote it months ago when this day was only a dream.  It is for all of who have reached out to me for the sake of Barbara.  Words are power.

 

Crimson Flag of Silence

We will raise for you
a monument of words.
We will build a tower
to the sky here
in this city of Babel
where all the voices
gather into one language
speaking your name,
Barbara.

We will not be
quelled.
We will pile word
upon word up
to the doorstep of God,
constructing for you a fortress
a mountain
an indestructible testament that we have
not imagined your life
or your death.

From its highest pinnacle we will
fly the crimson flag of
your silence.

Pie (a poem for Uncle Roy)

Uncle Roy is the uncle
I don’t remember,
the one who called grandma
on the phone
after Christmas dinner
to say hello.
He was the exotic uncle,
the special one, the uncle
who went all the way west
to Oregon
and stayed.

I know about being the oldest,
about being restless and
how you can love your home
and still not be able
to stay there.

Uncle Roy was the unorthodox uncle
who did what he wanted,
not what he was told.
His mysterious sickness
confounded the doctors and the
analysts who shook their
heads at him as he
walked away.

On his deathbed he
willed us all to eat pie
in his honor—sugar,
in our family, being
the universal language of love.
Now he’s gone again—
off to somewhere we’ve all
heard of, but
none of us have been.

Love Poem to the Sun

a poem from a very old notebook
(If the jungle could write a poem, it would be this one.)

rise on me
scorch me
head to toe

push yellow fingers
through the millions of miles
to love me

come to me
sliding over my skin
and turn me
yellow, brown, red

i will sing for you
scream for you
howl at the moon
and dance